It’s hard to think about what kind of boy and man he will grow up to be because of some of the struggles he has, like his sensory issues. It’s another thing to have to worry about how he will turn out because he was constantly having a negative reaction to my disabilities. And ultimately that creates a storm of junk that we can’t “solve” or heal. We are left just to deal with it from day to day and hope that the end is not as bad as it sometimes appears it may be.
I know that Ezra’s issues are not as bad as other kids who have autism and stuff like that. But the stuff I deal with makes it, I think, just as hard.
When our son Jack was born in 2009, it seemed like a natural thing that he would grow up to enjoy many of the same things that I had as a boy and young man, which I thought to be synonymous with being a growing boy: throwing the baseball and football; swimming; trying various sports and activities; hiking, camping, climbing, rappelling, and enjoying the great outdoors; and so much more.
In other words, I was expecting what I grew up thinking was a typical male child. As it turned out, I was wrong.
As parents of a child with special needs, we are wandering in the wilderness. We are thirsting in the desert. But through both arguments and tears, laughter and joy we can walk together as a couple and, because of that, as a family.
Both my husband and I would agree our faith was much shallower before we had a child with special needs. The Bible talks repeatedly about the reason for trials and tribulations in the life of a believer, but we both thought that Jesus was supposed to make everything easy and happy all the time. Having been through what we have been through, we both now realize that our faith is deepened through the hard times when we lean on and trust in Christ.
The greatest need that the special needs family has is recognition of the fact that they are first and foremost, “normal” people, just like you.
The Story Behind the Series The story of this series begins five years ago. Kathryn, Sara, and I were young military wives who had met online. We were expecting our first babies – all boys. We commented on bumpdates and nursery pictures and even sent baby gifts to each other. One after another, we gave birth to our precious baby boys. … [Read more…]
Announcing 31 Days of Supporting the Special Needs Family – a blog series starting October 1, 2014 at beautifulinhistime.com. Providing hope and encouragement to special needs families and endeavoring to open dialogue, build bridges, and create community.
I want to be a voice that starts a much-needed dialogue between people facing different circumstances and difficulties. I want to be a voice that helps create unlikely friendships through the power of empathy.
It was the summer of 2010 and I and my two best online friends, Kathryn and Sara were expecting our little boys. We had met on Christian Military Wives and were all due within a 2 month time-span. We shared pregnancy photos and excitement at the birth of our precious boys. We had a lot in common – … [Read more…]