In my final sleepy thoughts, I realized there was something familiar about that journey up the stairs. My journey with my daughter carried the same blindness, the same groping for answers, the same stumbles and getting up. This single thought gave me great hope:
At the bottom of the stairs, I had to trust that the light would come – only if I moved forward.
Feeding a child through a feeding tube requires a lot of time, dedication, patience, trial and error, and plain old mothering instinct. There are good sides (yes, good!) to tube-feeding and bad sides to it as well. And sometimes, things can get ugly. As I’ve navigated through this journey and have become an advocate for my son through awareness of tube-feeding, I have been able to think of all of the good, bad, and ugly things. Here are some of the top ones I’d like to share!
When our son Jack was born in 2009, it seemed like a natural thing that he would grow up to enjoy many of the same things that I had as a boy and young man, which I thought to be synonymous with being a growing boy: throwing the baseball and football; swimming; trying various sports and activities; hiking, camping, climbing, rappelling, and enjoying the great outdoors; and so much more.
In other words, I was expecting what I grew up thinking was a typical male child. As it turned out, I was wrong.
Both my husband and I would agree our faith was much shallower before we had a child with special needs. The Bible talks repeatedly about the reason for trials and tribulations in the life of a believer, but we both thought that Jesus was supposed to make everything easy and happy all the time. Having been through what we have been through, we both now realize that our faith is deepened through the hard times when we lean on and trust in Christ.