1. Katie! This brought me to tears because this is my reality. Somehow it hurts to read these words and say this is my life, and at the same time feel that feeling “I am not alone.” Thanks for sharing today!

  2. Katie Emanuel

    This is a tough road we walk, isn’t it? It is so much more than we ever could have imagined, but we DO have each other! We are not alone <3 Thank you so much for reading and sharing your perspective, too!

  3. I would add that showing up with something as simple as a Chai for a mommy of a special kiddo can bring such joy… it has for me! When you are spending all your money on the ‘important’ things you often don’t allow yourself a few of the extras! 🙂

  4. Meg F

    If our medical expenses were an income, it would *still* be above the poverty line for a family our size. It’s a catch-22 – your heart says you’d do anything for your kid kid, but your head is mentally calculating if the checkbook can take another hit.

    Even if you can’t afford to help financially, understanding goes a long way. Don’t assume that just because there is a decent income that we’re rolling in dough. Believe me – it’s no real “honor” being named the patients that spent the most money ($30+K/year) at a CVS two years in a row.

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