I remember exactly where I was in my car when I first heard Rachel Platten’s song, Stand By You. Her song is a personal anthem of loving in the hardest of places, not giving up. Initially, it ran through my head on those hard days of marriage. But most recently, I realized how well it fits … [Read more…]
I’ve written this, my story – my son’s story – for all the moms out there who are in this awkward state of quasi-“special needs” but have no real claim to the title. For the moms who have put in the hours at the doctors office or the school district and had the evaluations, but come up empty. For the moms who are seeking help and answers, but can’t seem to get anyone to listen.
For the mom who feels alone in the typical world, but still remains on the outskirts of what seems like a privileged “special needs” community. You know your friends are exhausted, running ragged from therapy to therapy – but sometimes you envy them, because at least they have an answer, they have professional help. You’re just left with your child, alone in your quest for answers.
It’s hard to think about what kind of boy and man he will grow up to be because of some of the struggles he has, like his sensory issues. It’s another thing to have to worry about how he will turn out because he was constantly having a negative reaction to my disabilities. And ultimately that creates a storm of junk that we can’t “solve” or heal. We are left just to deal with it from day to day and hope that the end is not as bad as it sometimes appears it may be.
I know that Ezra’s issues are not as bad as other kids who have autism and stuff like that. But the stuff I deal with makes it, I think, just as hard.