In honor of Mother’s Day, I asked special needs moms on my Special Needs Survival page to share with me pictures of their kids as well as their thoughts about Mother’s Day, in relation to special needs parenting. I loved what they had to say about what Mother’s Day means to them. I hope that … [Read more…]
It’s the most wonderful time of the year… But you know that’s not always the case. For kiddos that thrive on routines, face behavioral challenges, get overwhelmed quickly, need special diets, and more, facing the holiday season can fill a special needs parent with dread. (Secret: You are not alone!) That’s why it’s so great that … [Read more…]
I’m a week away from being done with my music appreciation class. I have found this class to be highly enjoyable and enlightening. The book has covered the lives of many of the most well-known composers throughout music history. One thing that has been incredibly thought-provoking to me in studying the lives of these men … [Read more…]
Social skills and communication skills can be hard for any child to master. Children with special needs especially struggle in these areas. Recently I was looking on Amazon for CDs that address these skills that Ezra could enjoy listening to. I contacted the producers of these CDs, and they have so very graciously sent me review … [Read more…]
Special needs parents are like a pitcher of water. We keep pouring out our energy for our children, the household, work and everything else. It’s no surprise that eventually there’s none left. We are left empty and we have nothing left to give to our children either. We need to find ways to fill ourselves back up with energy, joy and happiness so we can be full of wonderful things to give to pour out to our children.
Comparing my life to friends with neuro typical kids was killing me with seeing everything that T couldn’t do, while comparing my life to those with greater challenges made me feel like I couldn’t ask for help, because my life was easy compared to theirs. I had to stop all of it to be able to embrace our own journey.
Life is complicated, and my hard is just that – my hard – just as your hard is your hard. No comparison necessary.
What if in building your walls of protection and barricading hearts you shut out the ones who just might actually want to stay? Community is a two way street. If you don’t let them in, you will never know the ones who truly love well.
So, what if you let down that wall and just let them in?
So many people say I must be a “super mom,” but I don’t feel that way at all. Is it hard to find the blessings in the challenges? Absolutely! With God’s help, though, we continue to walk through all the challenges and get stronger every day!
In my final sleepy thoughts, I realized there was something familiar about that journey up the stairs. My journey with my daughter carried the same blindness, the same groping for answers, the same stumbles and getting up. This single thought gave me great hope:
At the bottom of the stairs, I had to trust that the light would come – only if I moved forward.
Feeding a child through a feeding tube requires a lot of time, dedication, patience, trial and error, and plain old mothering instinct. There are good sides (yes, good!) to tube-feeding and bad sides to it as well. And sometimes, things can get ugly. As I’ve navigated through this journey and have become an advocate for my son through awareness of tube-feeding, I have been able to think of all of the good, bad, and ugly things. Here are some of the top ones I’d like to share!
When our son Jack was born in 2009, it seemed like a natural thing that he would grow up to enjoy many of the same things that I had as a boy and young man, which I thought to be synonymous with being a growing boy: throwing the baseball and football; swimming; trying various sports and activities; hiking, camping, climbing, rappelling, and enjoying the great outdoors; and so much more.
In other words, I was expecting what I grew up thinking was a typical male child. As it turned out, I was wrong.