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Ezra’s Story: from “typical” to a behavioral diagnosis
I've written this, my story - my son's story - for all the moms out there who are in this awkward state of quasi-"special needs" but have no real claim to the title.…
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Encouragement for the Pregnant Special Needs Mom
And that power will pull you through the difficult times when you are carrying life inside you and carrying a special one in your arms.
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A Special Needs Mom With Special Needs
What it means to be a special needs mom is to breathe through the crisis, avoid the crisis, and cherish the small moments when there isn’t one.
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Yes, jaundice can do that! {Diagnosis Spotlight: Kernicterus – KI}
Wait. What? Jaundice can do that?!?! and it did. Jaundice did the thing. It put my boy in a wheelchair.
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Etched Upon My Heart Forever {Diagnosis Spotlight: Down Syndrome}
Michael was knit in my womb by God Himself. He was not a mistake or overlooked by God while He was busy knitting “perfect” children. There was not a Michael Model A and…
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Dark House of Hope {Diagnosis Spotlight: PDD-NOS}
In my final sleepy thoughts, I realized there was something familiar about that journey up the stairs. My journey with my daughter carried the same blindness, the same groping for answers, the same…
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Primary Immune Deficiency Disease: Parenting a Child with PIDD
It’s not because I’m terrified of germs. It’s because I’ve spent too many hours in the emergency room, too many nights in the hospital, too many days sitting in surgery waiting rooms, too…
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Our Journey with Tube-Feeding: The Good, the Bad, and the Ugly
Feeding a child through a feeding tube requires a lot of time, dedication, patience, trial and error, and plain old mothering instinct. There are good sides (yes, good!) to tube-feeding and bad sides…
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Understanding the Financial Needs of a Special Needs Family (and how YOU can help!)
One of the most difficult aspects our family and all families with special needs children must face is the financial impact of the care our children need and deserve. I am often asked…
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Life as a special needs dad (when you have anxiety)
It's hard to think about what kind of boy and man he will grow up to be because of some of the struggles he has, like his sensory issues. It's another thing to…
