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Yes, jaundice can do that! {Diagnosis Spotlight: Kernicterus – KI}
Wait. What? Jaundice can do that?!?! and it did. Jaundice did the thing. It put my boy in a wheelchair.
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Etched Upon My Heart Forever {Diagnosis Spotlight: Down Syndrome}
Michael was knit in my womb by God Himself. He was not a mistake or overlooked by God while He was busy knitting “perfect” children. There was not a Michael Model A and…
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Dark House of Hope {Diagnosis Spotlight: PDD-NOS}
In my final sleepy thoughts, I realized there was something familiar about that journey up the stairs. My journey with my daughter carried the same blindness, the same groping for answers, the same…
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Primary Immune Deficiency Disease: Parenting a Child with PIDD
It’s not because I’m terrified of germs. It’s because I’ve spent too many hours in the emergency room, too many nights in the hospital, too many days sitting in surgery waiting rooms, too…
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Our Journey with Tube-Feeding: The Good, the Bad, and the Ugly
Feeding a child through a feeding tube requires a lot of time, dedication, patience, trial and error, and plain old mothering instinct. There are good sides (yes, good!) to tube-feeding and bad sides…
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Understanding the Financial Needs of a Special Needs Family (and how YOU can help!)
One of the most difficult aspects our family and all families with special needs children must face is the financial impact of the care our children need and deserve. I am often asked…
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Life as a special needs dad (when you have anxiety)
It's hard to think about what kind of boy and man he will grow up to be because of some of the struggles he has, like his sensory issues. It's another thing to…
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Embracing My Son’s Autism: A Dad’s Perspective
When our son Jack was born in 2009, it seemed like a natural thing that he would grow up to enjoy many of the same things that I had as a boy and…
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Growing up with a Sibling with Down Syndrome {A Sister’s Perspective}
From a sibling’s perspective of growing up with someone with special needs: I would have it no other way.
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Making a Way in the Wilderness: Marriage and Special Needs
As parents of a child with special needs, we are wandering in the wilderness. We are thirsting in the desert. But through both arguments and tears, laughter and joy we can walk together…
