In honor of Mother’s Day, I asked special needs moms on my Special Needs Survival page to share with me pictures of their kids as well as their thoughts about Mother’s Day, in relation to special needs parenting. I loved what they had to say about what Mother’s Day means to them. I hope that … [Read more…]
As part of our Special Needs Survival series, I am going to be honing in on one of my son’s diagnoses: ADHD. Ezra was diagnosed almost 2 1/2 years ago now. We have undergone hours upon hours of behavioral therapy, and I want to share THE BEST tips we have learned along the way. Today, I’m … [Read more…]
Two years ago, I participated in the 31 Days Blogging Challenge with a series for Special Needs Families. It was called “31 Days of Supporting the Special Needs Family: Opening Dialogue, Building Bridges, Creating Community.” A few months ago, I again felt the burden to open up this blogging space for the support and encouragement … [Read more…]
This past Sunday night, after a long battle with my digital TV antennae, I settled myself down in the basement couch to watch the USA Women’s Gymnastics Olympic Trials. I found myself a little overcome with emotion. Four years ago, I watched the Fierce Five win gold from the same couch set in our little … [Read more…]
This post is an unplanned followup to my post, What I’m doing differently with my second baby (based on 5 years of parenting a special needs first baby). As babies grow, we learn more about how to raise them. With this post, I’d like to share more realizations I’ve had about Little Brother, Ezra, myself, and parenting in … [Read more…]
They say that hindsight is 20-20. As I look back to Ezra’s babyhood, I now see that his neurological differences were apparent from day 1. He hated to sleep and thus fought it with a vengeance, needed intense sensory stimulation (especially proprioception), lacked self-soothing capabilities, and struggled with independence. This is who he was born … [Read more…]
Between the snow days, the child-not-sleeping, the pregnancy, and the busyness of doing all. the. things., I’ve been incredibly UNmotivated to do anything blog related. I would apologize but I’m not going to lie…I’m totally okay with it. In my absence though, here’s some other great reads that other blessedly motivated people have written. Enjoy! … [Read more…]
Rather than giving an incentive such as desert for eating dinner, reward bite-for-bite with foods that are desirable to the child.
It’s not because I’m terrified of germs. It’s because I’ve spent too many hours in the emergency room, too many nights in the hospital, too many days sitting in surgery waiting rooms, too many weekday afternoons administering immunoglobulin infusions, too many visits to the lab to get immunoglobulin levels drawn. I’m “that” mom because I’m looking at the world through the lens of PIDD.
I long for the day when he will learn to self-soothe. But expecting that of him has just left us all frustrated and exhausted. So, maybe for now, I’ll choose the twenty steps back if it means I can take two steps forward.
I wish I could quit. Just lay down and say, “That’s the last straw. My back is broken. I give up.” But with this job, there is no laying down. No quitting. No giving up.
Welcome to Monthly Link Love, where I share some goodies from other bloggers around the internets. Several of these posts really made me think – and I hope they will stir up your mind too!
So, to all of the moms of all of the difficult children out there: It will probably never be easy. But it will always be worth it.
There’s so much hard, painstaking work and progress that both me and my son have made – even just today in the hours since you cast your judgment our way. But you didn’t see it.