It’s not because I’m terrified of germs. It’s because I’ve spent too many hours in the emergency room, too many nights in the hospital, too many days sitting in surgery waiting rooms, too many weekday afternoons administering immunoglobulin infusions, too many visits to the lab to get immunoglobulin levels drawn. I’m “that” mom because I’m looking at the world through the lens of PIDD.
I long for the day when he will learn to self-soothe. But expecting that of him has just left us all frustrated and exhausted. So, maybe for now, I’ll choose the twenty steps back if it means I can take two steps forward.
I wish I could quit. Just lay down and say, “That’s the last straw. My back is broken. I give up.” But with this job, there is no laying down. No quitting. No giving up.
Welcome to Monthly Link Love, where I share some goodies from other bloggers around the internets. Several of these posts really made me think – and I hope they will stir up your mind too!
So, to all of the moms of all of the difficult children out there: It will probably never be easy. But it will always be worth it.
There’s so much hard, painstaking work and progress that both me and my son have made – even just today in the hours since you cast your judgment our way. But you didn’t see it.